about us

MND Australia is the national peak body of state organisations that support those living with and impacted by Motor Neurone Disease (MND). Since 1983, we have been the voice for the MND community. Our national and international networks help increase understanding of the disease and advocate for the needs of those affected. Through our research arm – MND Research Australia – we fund world-class research for better treatments and ultimately a cure. Learn more at our website.

about the role

This new ongoing position at up to four days per week (0.8 FTE) will be responsible for delivering key parts of the MND Australia strategic plan including advocacy, government relations, policy and issues management particularly in the health, aged care and disability areas by:

• developing progressive and relevant advocacy and issues management initiatives as identified by MND Australia and the State MND Associations
• developing, implementing and evaluating advocacy strategies, to enable MND Australia policy propositions to be adopted
• providing strong advocacy and government relations including development of key messages and policy, engagement of key decision makers, the newly-established Parliamentary Friends of Motor Neurone Disease group, education and awareness raising, networking and capacity development.

We provide various benefits including a purpose-driven and supportive culture; flexibility in work arrangements to best balance work priorities and your family, study and other personal commitments; mostly work remotely from your place of choice (and sometimes at the MND Australia office in Canberra as well as infrequent travel to other States); FBT exempt salary packaging.

For further details regarding this opportunity please contact the MND Australia CEO David Ali via [email protected] using the subject line: National Policy / Advocacy Manager enquiry via EthicalJobs or 0438 202 642.

A position description is attached.