• Location: Cystic Fibrosis Community Care, Burwood NSW office or Carnegie VIC office / Partial working from home arrangement available
• Time Fraction: 30 hours per week (0.8 EFT)
• Duration: Contract part time, fixed term until 30 June 2024

Cystic Fibrosis Community Care

Cystic Fibrosis Community Care was created by the merger of Cystic Fibrosis Victoria and Cystic Fibrosis NSW on 1 July 2017. The mission of CF Community Care is to increase the well-being and quality of life of people living with cystic fibrosis (CF), and promote broader awareness of CF. It does this through the provision of advocacy, support and information services, research, public awareness programs and fundraising.

Central to its work are its values and a commitment to respect and inclusiveness, integrity, pursuing excellence, valuing staff and volunteers, and working in partnership with the CF community.

Key Responsibilities and Duties

Cystic Fibrosis Community Care has received funding to expand our online space to include a series of online resources and information for adults and young people living with CF. 

These resources focus on young people transitioning from paediatric to adult health care and managing both their health care and broader life during this period, as well as adults managing their CF as they continue to grow older. The information and resources are available across a range of media, including videos, podcasts and blogs of the experiences of people living with CF; fact sheets; and online learning. The role’s primary purpose is to coordinate the delivery of the project and develop and coordinate new digital content for the project.

Project Coordination

• Coordinating the project plan in collaboration with the project team. The project team incorporates both internal and external stakeholders including the CFCC Support and Marketing teams, CF Clinics, state CF organisations, community members, community member and health professional advisory groups.
• Follow and update where required, the detailed project plan, including the communications and evaluation strategy, with milestones and key performance indicators and monitor the projects progress against the project plan.
• Work with the project team to ensure the project follows the project plan and is delivered to the agreed quality, timeframe and within budget, including modifying as required in response to feedback and evaluation outcomes.
• Support the coordination of the projects advisory groups of community members and other external stakeholders to provide expert advice on required content.
• Provide regular project reports to the project team, project lead, and funder as per the project plan.
• Adhere to the funder requirements for the project.
• Liaise with the Marketing and Fundraising team to create web and social media stories to promote our digital programs.
• Relationship management, including communicating, maintaining, and developing key stakeholder relationships with organisations such as paediatric CF Clinics, Department of Education and Training, other CF organisations, and the CF community.

Content Creation

• Liaise with stakeholders such as community members, staff, health professionals and provide expert advice on required content for the online resource based on the needs and preferences of community members and on available evidence. 
• Coordinate and support community members and health professionals to develop content for CFStrong, including supporting them to write content or be interviewed for a podcast, written story or video of their own experiences of CF or as a subject matter expert.
• Coordinate the recording of podcasts and videos, including scheduling and briefing the interviewers, interviewees and film crew.
• Work with subject matter experts and stakeholders to coordinate the development of online learning with support from the Marketing Manager.
• Write, review, edit and publish content for CFStrong – Adults & Transition (Young People), including briefing community members and health professionals to develop content and review, edit and publish content they create.
• Develop and implement a maintenance plan for CFStrong to keep it updated, ensure current content is reviewed and new content is planned so it remains correct, current and relevant.

Raise the profile of CFStrong

• Identify opportunities to promote CFStrong – Adults & Transition, bringing transition to life, through relevant networks, social media and other communication channels. 
• Ensure all CFStrong content is developed so it is found in online searches and incorporates SEO best practices and guidelines.

Position Requirements

Skills, Knowledge and Experience:

Essential

• Excellent oral and written communication skills.
• Highly organised, with a proven ability to initiate, manage and coordinate a program and meet deadlines.
• Excellent interpersonal skills and the ability to work collaboratively with a range of stakeholders.
• Confident in decision making and creative problem solving.
• Experience with website development.
• IT literacy in main set of Microsoft programmes.

Highly regarded

• Experience of creating and/or editing podcasts.
• Experience with Google analytics.
• Understanding of CF.
• Experience of working in a not-for-profit health organisation.
• Experience using Salesforce and SharePoint.

Qualifications and Training

Essential

• 3 - 5 years’ relevant work experience.
• Police and Working with Children checks.

Highly regarded

• Tertiary qualifications in a relevant field (such as marketing or writing).
• Experience working in the health or medical sector.

How to Apply

To apply for the position, please submit your application via the Apply Now link below.

Applications will be reviewed on an ongoing basis.