ABOUT MITOCHONDRIAL DISEASE (MITO)

Mito is a potentially fatal genetic disorder that robs the body's cells of the energy they need to thrive. Only recently identified and originally thought to be a rare disorder (affecting 1 in 20,000 people) it is now known that 1 in 200 people carry genetic variants that put them at risk of developing mito or unknowingly passing the disease on to their children, and 1 in 4,300 people will develop this progressive and devastating disease.

ABOUT MITO FOUNDATION

Based in our head office in Surry Hills in Sydney, Mito Foundation offers flexible working arrangements with attractive salary packing options leveraging the foundation’s FBT exemption status to maximise your take-home pay.

Mito Foundation is a dynamic charity dedicated to improving the health outcomes and quality of life for people impacted by mitochondrial disease (mito) and their families. Mito Foundation’s purpose is to end the suffering from mito and our vision is to be the catalyst for energy, hope and cures for every Australian impacted by mito.

Our team is driven to support the mito community whilst seeking a cure through strategies across empowerment, advocacy, education, fundraising and research. We strive to live by our values of excellence, commitment, compassion, collaboration and gratitude.

Mito Foundation supports individuals impacted by mito and their families via:

• offering a range of Mito Foundation and community-led support services that aim to empower and support mito community members
• funding research into mito by identifying and funding strategic research initiatives that improve diagnosis and treatment and translate into preventions, treatments and cures
• Transforming outcomes for mito patients and families by advocating and educating appropriate stakeholders to achieve equitable access to high-quality diagnosis, treatment and support
• Strengthening our organisation through excellent governance, financial security, capacity and capability underpinned by our fundraising strategies.

About the role

Do you have research and analysis experience and want to make a real difference?

Mito Foundation is committed to multiple strategic projects to strengthen the impact of our work and improve the health outcomes for individuals impacted by mitochondrial disease.

Mito Foundation is looking for individuals with interest and experience in some or all the areas outlined below. These responsibilities may comprise one full-time or multiple part-time 12-month contract roles depending on the skills and availability of candidates.

Community research analyst

Responsibilities

• Consolidating existing insight data sources (including interview transcripts, personal stories and academic publications), analysing for themes and loading into new insights repository
• Designing and maintaining a coding framework for themes and supporting other team members to use the framework
• Designing and conducting research through surveys and interviews, working closely with relevant team members
• Document incidental findings and case studies triggered by support cases
• Analysing community insights from the repository on various topics and themes
• Writing summaries of research results for various audiences

Experience required

• Research design and analysis, particularly using qualitative methods
• Conducting interviews with community members in a safe and empathetic way
• Strong written and verbal communication skills
• Confidence with technology, including learning new tools

Biomedicine research analyst

Responsibilities

• Research, synthesise, analyse, and communicate information to make informed recommendations
• Collate and prepare quality reports efficiently from various data sources to support decision-making
• Monitor reporting compliance of grant recipients
• Assist with accurate scientific communication including communicating complex scientific information to different audiences and communication channels, including the mito community, research community and donors
• Read and monitor all research progress reports from grant recipients and update the wider Mito Foundation team on research progress
• Provide logistics support at mito meetings and bi-annual scientific conference

Experience required

• Biomedical science qualification/background
• Quantitative and qualitative data analysis and impact evaluation
• Report writing
• Strong written and verbal communication skills