Support RVA’s Communications Manager across a range of tasks, including assisting with:

• Managing content updates on RVA’s websites and helping with dedicated email sends.
• Content development and dissemination across RVA’s social media channels (Facebook, Instagram, Twitter, LinkedIn, YouTube and in the closed Facebook group for RVA Partner group leaders). This includes creating and designing a social media schedule, content and monitoring platforms.
• Creating content as needed to drive maximum engagement.
• Coordinating RVA’s monthly e-Newsletter to all stakeholders. This includes developing content, updating the e-Newsletter and collaborating with others.
• Public relations (PR) activities.
• Managing RVA’s (as the national alliance) participation in Rare Disease Day (RDD) annually. This may include overseeing illumination planning, content development and posting updates to the RDD Australia website and Facebook page.
• Content creation and updates for the Rare Awareness Rare Education (RARE) Portal, a living website of rare diseases information that is launching soon.
• Overseeing RVA’s 10-Year Ambassador Program.
• Other related tasks as required.

Support RVA’s Administrative Manager with general administrative duties, including:

• Providing administrative support for a range of RVA projects.
• Managing RVA’s partnership database, including adding new members to our communications mailing list, answering membership enquiries and liaising with stakeholders.
• Processing invoices and approvals using Xero, ensuring accuracy and timeliness.
• Monthly reconciliation of bank account.
• Providing support for event and meeting coordination.
• Assisting with the coordination of pharmaceutical company sponsorship.
• Other related tasks as required.

Other duties

• Actively participating in the planning and facilitation of the 2022 National Rare Disease Summit which engages all stakeholders (rare disease organisations/groups, researchers, clinicians, key peak bodies, industry and government).
• Participating in the planning and facilitation of all other RVA events (e.g. RVA Parliamentary Events, webinars etc).
• Contributing to a positive and effective team focussed on improving the lives of Australians living with a rare disease.

A position description is attached.