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Chief Executive Officer - Remote / Work From Home

Muscular Dystrophy Foundation
  • Lead a growing Not-for-Profit (NFP) focussed on coordination and collaboration for neuromuscular community
  • Work with State-based organisations and coordinate strategic national projects
  • Would suit emerging NFP leader who thrives on identifying opportunities for fundraising, as well as building strong relationships with senior managers and external stakeholders
  • Work part-time, anywhere in Australia

The Organisation

The Muscular Dystrophy Foundation Australia (MDF) is the national voice for people with muscular dystrophy and other neuromuscular conditions. MDF facilitates cooperation and collaboration between state/territory neuromuscular organisations, pursues strategic national projects and grant opportunities, and engages with government and other stakeholders to advocate for the interests -of people with neuromuscular conditions.

MDF is funded through a mix of donations and bequests, contributions from State/Territory neuromuscular organisations, and fundraising. Developing fundraising opportunities that will inspire potential donors and lead to donor growth within a national fundraising campaign, is a key priority.

The Role

The CEO will:

  • lead the organisation and deliver on the strategic direction agreed to by the Board and State/Territory neuromuscular organisations;
  • work closely with CEOs of State/Territory-based neuromuscular organisations. A key focus of the role is to facilitate collaboration across State-based organisations and coordinate strategic national projects which benefit the neuromuscular community;
  • be responsible for developing MDF’s fundraising capability and will work with State/Territory CEOs to establish a national fundraising campaign;
  • promote the needs and interests of people with neuromuscular conditions in national conversations, and influence government policy and funding decisions which impact on the neuromuscular community;
  • foster and manage relationships with key external stakeholders across the disability, health and not-for-profit sectors;
  • support innovation in the way the strategic plan is achieved;
  • manage the day-to-day functions of MDF (with administrative and finance support);
  • act as board secretary to the MDF board and
  • attend relevant state and national meetings.

The role is part time: 2-3 days per week (with significant flexibility in terms of days and hours of work). The position will be offered initially on a 12-month contract, with a 3-month probation period.

MDF does not have physical premises and you will work in a virtual office environment. You can be located anywhere in Australia.

About you

  • minimum three years’ experience as a senior manager in a not-for-profit organisation – eg. in a CEO, General Manager, strategy, fundraising or business development role;
  • demonstrated success in growing an organisation’s revenue base through fundraising, accessing philanthropic and sponsorship opportunities, and business development;
  • demonstrated capacity to facilitate cooperation and collaboration across diverse stakeholders;
  • demonstrated capacity working with senior managers and leaders in government and the not-for-profit sector to achieve change;
  • demonstrated ability to grow an organisation’s revenue base through business development, government grants, and accessing philanthropic and sponsorship opportunities;
  • superior communication skills;
  • understanding of the National Disability Insurance Scheme and the needs of people with disability;
  • current national police check and working with children/vulnerable persons check (as per requirements of the State/Territory where you live).

A position description is attached.

For further information, please email your questions to chairperson@mdaustralia.org.au using the subject line: Chief Executive Officer - Remote / Work From Home enquiry via EthicalJobs.

How to apply

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