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Data Officer

Murdoch Childrens Research Institute

Who Are We?

Victorian Clinical Genetics Services (VCGS) is a not-for-profit subsidiary of the Murdoch Children's Research Institute www.mcri.edu.au and provides a wholly integrated genetic testing, diagnostic and counselling service for health professionals, patients and their families across Victoria, Australia and globally. Our clinical geneticists and genetic counsellors work in close consultation with our medical scientists to provide the most accurate interpretation for complex genetic tests. VCGS also plays a pivotal role in research and development, driving translational research and policy development in the field of genetics.

We are committed to ensuring a positive working environment that values all backgrounds and experiences. We cultivate an inclusive culture that is underpinned by equal opportunity for all and a culture based on respect, consideration and dignity. We are also committed to developing our people and fostering an environment where learning and development is central to our staff reaching their full potential.

Your Opportunity

The Data Officer will assume responsibility for oversight of secondary use of genomic data at VCGS from both an operational and policy perspective. Holistically spanning technical aspects as well as data governance, ethics, provenance, consent and data integrity, this critical role will ensure that data use is conducted in a manner that meets regulatory and legal requirements, respects, supports and protects patients, while broadly maximising benefit from genomic data availability and use. You will exercise your technical skills through your active role in overseeing and facilitating data sharing transactions including guiding development of internal and external facing infrastructure to automate these processes. You will also play a higher level role in developing data sharing policy and strategy, both within VCGS and more broadly within Australia through participation in ongoing consultation on national and state policy and infrastructure discussions. Key stakeholders will include rare disease researchers at the Murdoch Children’s Research Institute, staff within partner alliances such as the Melbourne Genomics Health Alliance and the Australian Genomics Health Alliance.

This position offers the right individual an opportunity to become deeply immersed in some of the most critical issues confronting modern genomics and play a highly valuable role to serve patients by enabling optimal outcomes from clinical data sharing and genomic research.

Your responsibilities include but are not limited to

  • Understanding technical, clinical, legal and governance elements of genomic data sharing, and ensure compliance.
  • Overseeing execution of data sharing transactions, ensuring the overall process executes in a smooth and timely manner.
  • Assist data requestors to understand and meet requirements for data release and transfer.
  • Consulting with internal and external stakeholders to identify and manage risks that could result from specific data sharing transactions.
  • Through consultation, identify and propose future improvements to data sharing processes and infrastructure.
  • Reviewing policy and process documents to advise on improvements.
  • Ensuring data sharing is conducted in accordance with regulatory and clinical governance requirements.
  • In collaboration with technical teams, guide development of infrastructure to facilitate data sharing.

Selection Criteria

Essential

  • Understanding of core concepts relating to genomic technologies and genomic sequencing data.
  • Experience in dealing with human research ethics and consent, including familiarity with relevant standards and legal frameworks.
  • Familiarity with essential concepts of network /data integrity and security.
  • Excellent interpersonal skills and strong written and spoken communication skills.
  • Technical skills relevant to data management including.
    • ability to manage data using computational approaches (eg: scripting or use of data analysis tools / languages).
    • demonstrated ability to manipulate data using common office software (Excel, etc), understanding common pitfalls.
    • ability to functionally manage data files (eg: using command line tools, transferring files using common mechanisms such as SFTP or AWS / Google cloud commands).
  • Empathetic nature including ability to represent patient and requestor viewpoint with respect to sharing of their data to third parties.

Desirable

  • Background (research or clinical) in dealing with rare disease.
  • Experience or knowledge with common databases used for managing research metadata (eg: RedCap) and associated ontologies (eg: HPO).
  • Experience in one of more data analysis and/or scripting languages (R, Python, Bash, Scala, Groovy or similar).
  • Direct experience in working with genomic sequencing data.
  • Familiarity with specific technical standards and legal frameworks relevant to genomic data sharing (for example, NHMRC guidelines on human ethics, or NPAAC standards).

What’s in it for you

  • 12 Month Contract (Possible Extension).
  • Attractive Salary $111,314-$132,454 per annum + Super (with Salary Packaging).
  • Full Time or Part Time negotiable.
  • Flexible Working Options, including opportunity to work part time from home.
  • Ongoing Career Development and Training.
  • Health and Wellbeing Program and an Employee Assistance Program.

Apply Now!!

If you believe you have what we're after please click 'Apply Now' to proceed with your application.

A position description is attached.

Any specific questions not answered in the position description should be directed to Dr Simon Sadedin simon.sadedin@mcri.edu.au using the subject line: Data Officer enquiry via EthicalJobs.

In one document only please place your:

  • Cover Letter
  • Response to Key Selection Criteria
  • Resume

If you experience technical difficulties when submitting your application, please contact recruitment@mcri.edu.au using the subject line: Data Officer enquiry via EthicalJobs.

On occasions where we receive a large number of applications, we may close the advert ahead of the publicised closing date. We would therefore advise that you submit your completed application as soon as possible.

All applicants please be aware that in line with the Victorian Chief Health Officer’s Directions, all MCRI and VCGS workers must be fully vaccinated, unless a medical exception applies. Applicants will be required to provide their Australian Government COVID-19 Digital Immunisation Certificate/s or evidence of medical exception or evidence of vaccination booking as part of our pre-employment requirements.

We encourage applications from Aboriginal and Torres Strait Islander people, all members of the LGBTQI community and people with disability. Should you require any specific support or adjustments please talk to us and we will be happy to accommodate.

All appointments are made subject to a satisfactory Police Check and a Working with Children check is compulsory.

Thank you for your interest in this role. We look forward to receiving your application.

How to apply

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